The Global Network of Personal Genome Projects includes researchers
at many leading institutions around the globe.
McLaughlin Centre, University of Toronto and
The Centre for Applied Genomics, Hospital for Sick Children
Founded Dec 2012
Visit PGP Canada subsite
CeMM Research Center for Molecular Medicine of the Austrian
Academy of Sciences
Founded in November 2014
Visit Genom Austria subsite
Members of the Global Network of Personal Genome Projects
adhere to the following guidelines:
- (a) Public Data.
Participants are invited to publicly share their genomic and
trait data in an integrated, publicly-accessible format using a
CC0 waiver or equivalent public domain license.
- (b) Non-anonymous.
The risks of participant re-identification are addressed up
front, as an integral part of the consent and enrollment
process; neither anonymity nor confidentiality of participant
identities or their data are promised to research participants.
- (c) Equal access.
Participants are provided access to their individual research
data in a timely and complete fashion (i.e., raw data and not
just summary results, where feasible).
- (d) Oversight.
Each member must at all times maintain current Institutional
Review Board (IRB) approval or local equivalent, and will work
with PersonalGenomes.org to continue to implement identified
best practices for responsible public genomics research.
- (e) Not for profit.
The research project is managed or sponsored by a non-profit
organization (or local equivalent). In addition, other than
purposes of reasonable cost recovery, the member shall not sell
or license participant data or tissues.
Join the network
If you are a researcher and you wish to receive the benefits of being
a member of this network, there is a competitive application process.
For more information about becoming a member site, please